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  • Sandra R.

Expansión


Tenemos familia que no vive cerca de nosotros, de hecho viven muy lejos de nosotros, y gracias a las redes sociales una prima y mi familia nos hemos puesto en contacto después de muchos años. En las típicas preguntas que se hacen cuando se re-conecta con alguien me hizo la siguiente: ¿tienen hijos? Y le platiqué de Gil.


Mi prima es una persona que cuando te hace una pregunta que comúnmente contestamos con un simple “bien” ella indaga más, realmente quiere saber detalles. Le platiqué del blog, pero resulta no lee en español, lo habla muy bien, ella dirá que medio bien, pero no lo entiende en escrito y me ha pedido en varias ocasiones escriba en inglés.

Por mucho tiempo intenté y fallé. Esto sorprenderá a varias personas, en especial a mi mamá, porque comúnmente la expresión por escrito se me daba con mucho más facilidad en inglés que en español, pero en el año que hemos estado con este proyecto de Acompáñame mi cerebro hizo el cambio a español. Ahora con la intención de que el granito de nuestra historia y este proyecto de crear conciencia e inclusión llegue hasta donde sea posible haré mi mejor esfuerzo por no solo expresarme y contar nuestras historias en español, también lo haré en inglés, no siempre, pero por algo se empieza.


Esta es la historia del nacimiento y diagnóstico de Gil.

Dora this is for you.


Gil was born on the first hours of a Friday, he was three weeks early, we weren’t ready. I woke up that Thursday morning with contractions and didn’t even know what they were until it was late in the afternoon.

When the Doctor said if the contractions started to happen every 15 minutes, among other things, it was time to head to the hospital. I panicked, like really panicked.

His crib wasn’t properly set up, his clothes weren’t washed, and my hospital bag was not pre-packed.

In between contractions and packing I started to cry those silent tears that just won’t stop rolling down your cheeks. Gil’s dad had to hold me down and tell me everything was going to be fine, that if it was happening now was because the little guy was ready to come out.


A little over three hours later Gil was crying his first cry, opening his eyes to the world and giving us a new purpose in life.


After the nurse had washed him, and had him all swaddled up, instead of handing him over to me or his father the first thing she said was “does his nose seem familiar?”, and proceeded to say other things to which I tuned out just thinking “Why won’t she give me my baby?”, and then she said “You’ll have to talk to the pediatrician but I think he has down syndrome”. We didn’t care, we just wanted to hold our baby and never let go.


When she finally did put Gil in my arms she continued to explain more about what she saw as indicators of Down syndrome and what we needed to be aware of in his first hours of life, and they drew blood from his tiny foot.


10 days later at the pediatrics office:


"He has down syndrome" the pediatrician said, "there was nothing you could have done" he said, "the good news is he appears to be perfectly healthy" they said. "You have been given a blessing" the nurse said. And I lost it, fear crept in: What does this mean?? What's going to happen?? What do we need to do??


Later on in life I learned it means you just have to take a different road, you need to really pay attention to what you are doing as a parent, no one knows what happens next, enjoy the ride as best you can.


Yes, there will be rough patches; yes you will want to scream at the top of your lungs some days, yes there will be health scares. But!! There will be so much love, love like you have never imagined feeling before. There will be so many happy tears, tears for accomplishments, tears from seeing your child simply enojy life.

#Familia #Diagnóstico #Nacimiento

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